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Beginning With the Patient in Mind:

6 Ways to “Reverse Engineer” Development Strategy to Accommodate the True Rare Disease Patient Journey


Designing a patient-centric trial should begin before a single patient is recruited or enrolled. But this effort takes careful consideration and intention, especially in small populations like rare diseases. As such, understanding the patient journey is key as small changes impact the patient experience. Read our white paper to learn how to begin designing development strategies with the patient in mind.

We’ll answer questions like:

  • How do we expand perspectives from a myopic scientific lens to apply holistic real-world considerations to design development strategies that truly have the patient in mind?
  • How do we accommodate the real-world patient journey in a population that is unlike any other – the rare disease patient?
  • What tactics can we employ for rare disease patients specifically?

Download the White Paper

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